It’s time to advocate for change. The law must reflect our right to know our genetic identity. Email us at [email protected] if you’re interested in volunteering.
You Have a Right to Know your true . . .
- medical history;
- cultural heritage;
- hereditary traits; and
- genetic relatives.
ADVOCATING FOR CHANGE
Here’s is a Quick Guide on the advocacy steps to take an idea and develop it into law. We are building a network of people who are on the ground making a difference in their state. Together we are strong! Together we can facilitate change in our legal system one law at a time.
Here’s a a busy but detailed overview of how an idea becomes a law in the U.S. Congress.
Meet with your Legislator
Our leaders want to hear from us. Meeting with your legislators is rewarding. Most know nothing about genetic identity issues. Here’s your chance to tell them your story, explain why knowing your genetic identity so important, and these experiences will only continue to grow as more people take consumer DNA tests.
Email your legislator and follow up with phone call. Volunteer in their office.
- Introduce Yourself: state your name and that you are a constituent.
- What Are You Asking: you are asking to support specific legislation or to prioritize a specific issues. Tell them in one sentence why you are writing.
- Why is This Your Concern: Write why this is important to you and how it affects you, your family, and your community.
- Thank You: thank them for their service and attention to the issue. Offer to meet to discuss further.
Dear Representative Smith,
My name is Susan and I am both a constituent and had an NPE/donor conceived/adopted. I am writing to ask that you support HR 123 creating a long form birth certificate. Last year I took an over the counter DNA test and learned my the man I thought was my father isn’t genetically related to me. This had devastating impact on me, my spouse and children, my family I grew up in, and my new family. The year before I had a major medical issue and not knowing my accurate medical information almost cost me my life. My children and descendants have the right and need to know who they are genetically related to. I will like to meet with you to tell you my story and discuss this important issue further. Vote YES on HR 123.
Dear Representative Smith,
My name is Susan and I am both a constituent and had an NPE/donor conceived/adopted. I am writing to ask that you prioritize legislation that ensures everyone’s right to know their genetic identity. Last year I took an over the counter DNA test and learned my the man I thought was my father isn’t genetically related to me. This had devastating impact on me, my spouse and children, my family I grew up in, and my new family.
Genetic identity matters. Knowing your true genetic identity is important for medical history purposes, identity formation, cultural heritage, familial relationships, and knowing your roots. 1 in 7 Americans have taken a direct-to-consumer DNA test, the popularity of this pastime has an unintended consequence – the exposure of a person’s true genetic origin. A late discovery, or DNA surprise, about a person’s true genetic identity can lead to emotional distress, an identity crisis, stress family dynamics, and have health implications. This has led to severe medical problems, mental health issues, and relations with unknown close relatives. These discoveries place unnecessary increased financial burdens on the healthcare industry and the mental health of individuals. We need to enact legislation to ensure everyone’s right to know who their genetic identity.
I will like to meet with you to tell you my story and discuss this important issue further.